“This whole journey started for me and my mother, who has Alzheimer’s, while we were staying at the hospital. There were quite a few residents on her floor who were using Hospice of the Midwest, so they were always getting to know other patients on the floor and being friendly as they passed by. When we decided we wanted hospice, it was good for my mother because she was familiar with them. I was also at ease because of their familiarity and having seen Hospice of the Midwest working with other families on the same floor. I knew I was going to be ready with open arms to them and their services.
Low and behold, as time went on, I truly realized how important hospice was. We all needed it; not just my mom. Hospice of the Midwest was so loving and always there for me, as the daughter of a patient. My personality is such that I can better cope with things the more I am aware of what is going on or what is going to happen. This takes away the uncertainty and unknown of how a situation is going to play out. You wonder what it is going to be like, but they gave me so much information and cared so much for my mother and me. I never felt like I was facing this situation alone, and I knew it would not be traumatic. I had knowledge. The power of knowledge, for me, helped in my mom’s passing. The last week I was prepared and ready to let her go.
There were many aspects I was pleased with – but there are a couple encounters that really stuck out to me. One day, all the nurses and staff who were working with my mother came in to do paperwork. Afterwards, we were all sitting in my mother’s room and they just wanted me to talk about my mom and what her life was like. They really wanted to know everything about her. It made me feel good to talk about her and tell what her life was like, and I could tell it helped them, too. This helped them know more than that she was simply my mother who wasn’t doing well.
Another moment that stands out with me was three days before she passed. As I said before – knowledge is power. I was there with my mom and it was clear she was very agitated and uncomfortable. It was very hard for me to see what she was going through and I knew I wouldn’t be able to stay there. The staff was able to notice how I was feeling and gave me an explanation as to why this was happening. Ensuring they would make her more comfortable, they made sure I knew it would be okay to go home for a bit. They were able to read me like a book and I was so thankful they recognized what was going on and made me feel okay to go home. It was wonderful.
Each staff member’s personality was so great and the team was simply the best. They were people who should be working in hospice. My family was so lucky to have the team from Hospice of the Midwest and that they took the time to know us before my mother even needed them. We were very blessed – and I don’t throw that word around lightly.
I am not afraid to tell people that Hospice of the Midwest is amazing. The team was phenomenal. I cannot stress enough that knowledge is power. All that I learned throughout the process of my mom declining was very powerful and it was good power. It was not scary because I knew what to expect. I was amazed at the difference they made.
My advice is this: Don’t go through this and think you can do it by yourself. Even if you think you have it together, you really don’t. I’m so glad I had hospice directly involved at the end of my mother’s life. People need to take advantage of hospice and be encouraged to use it.”
– B.T., Daughter of HOMW Patient